Like many young teenagers, 13 years old Hayley Okines is obsessed with pop star Justin Bieber, messaging her friends on Twitter and going shopping. But there is one big difference. Hayley has progeria, which means her body ages eight times quicker than normal. She suffers from arthritis, hip problems and baldness and dreams of having long lustrous locks that she can 'flick in the wind.'
Her life story is the subject of a documentary series for Five. When she last featured in 2010, she was starting secondary school and taking part in a pioneering medical trial in America.
Her mother Kerry, who lives with Hayley and her two other healthy children in Bexhill, says: 'Hayley is a typical teenager, she's more stroppy now and has a messy bedroom. She always likes to have the last word and thinks she knows everything like most teens!' It was hard letting go of the reins as Hayley grows up. 'It is difficult,' her mother added. 'She obviously wants to go out and I do let her go down to the local shops and go on sleepovers. 'She also goes to the local shopping centre with her friends but I like to be somewhere in the centre at the same time and I make sure she has her mobile on her in case she needs me.'
Kerry has good reason to be worried. Last year, Hayley was told by a doctor that her hip bones were in danger of dislocating and she now has to wear an uncomfortable brace nearly 24-hours a day. 'I don't like the brace as it's a bit heavy and stops me moving around as much,' she said.
Her mother Kerry added: 'She hasn't been able to go back to school since April. We were hoping she would go back but she's had more problems with her hips. 'They have partially slipped out even despite the brace and the doctors are now looking at the possibility of surgery and speaking to experts in America. 'Maybe she can go back to school next year...' she said.
Despite the latest setback Hayley continues to stay positive. 'She does online schooling which she loves. Maths, English, Science and Art. She is also doing a health and beauty course and they are designing their own salon,' Kerry said. The internet has opened up a whole new world for Hayley, who loves the social-networking site Twitter. It was thanks to her Twitter followers that she achieved a lifelong dream of meeting the pop singer Justin Bieber.